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Dementia Resources and Support

Hello Caregivers!   Do you have some additional resources  that should be on this list?  Please forward them to me in the contact form or a quick email. at - bhuelat211@gmail.com and I will add them to this growing list.  The list below are some of the many resources to support caregiving. Help keep it growing - we are all in this together!

Organizations

 

Upcoming Events

  • Sept. 14: Join us this week for an ASA, American Society on Aging Live on When the End Is Near.

  • Sept. 21: Attend an ASA Live with Compassion & Choices on Planning for Life (and Death) with Dementia: Honoring Choices.

  • Sept. 28: Register for a webinar on Hearing and Balance Disorders in Older Adults.

  • September 6 | 1:00 pm Eastern | 10:00 am PacificPart of the Empowering Professionals in Aging series. Presented by Home Instead, an Honor Company

  • September 28 | 1:00 pm Eastern | 10:00 am Pacific Hearing and Balance Disorders in Older AdultsSponsored by Right at Home.

  • Intimacy and Aging: How to Support Romance Across the LifespanPart of the Empowering Professionals in Aging series. Presented by Home Instead, an Honor Company.

  • October 4 | 1:00 pm Eastern | 10:00 am PacificExploring Ways to Pay for In-Home CareSponsored by Right at Home.

  • Oct. 3–5: ASA will be hosting a 70-hour sale to celebrate our 70th anniversary! Registration for On Aging 2024 will be only $475 during the sale—the biggest discount we will offer—so plan to register then!

  • Oct. 4: Attend a webinar on Intimacy and Aging: How to Support Romance Across the Lifespan.

  • Oct. 7: Advocate on Ageism Awareness Day using resources on our website!

  • Oct. 12: Register for the Exploring Ways to Pay for In-Home Care webinar.

  • Oct. 18: Attend a Brain Health Academy webinar on Smoking and Dementia.

  • October 18 | 1:00 pm Eastern | 10:00 am PacificSmoking and Dementia Part of the series Brain Health Academy by Us AgainstAlzheimer’s.

  • October 19, 10-11:30 AM Senior Services in Alexandria Workshop. Come hear local experts discuss the topic you need to keep safe inside and outside your home. This include Fall Prevention, Stroke Awareness, Home Safety, Prescription Interactions. Call SSA at 703-836-4414 X 110.

  • October 15-December 7, Medicare Open Season. The Virginia Insurance Counseling and Assistance Program (VICAP) offers support for individuals navigating Medicare.  Offering free one-on one counseling, VICAP plays a crucial role in guiding Virginians through their Medicare options. As the open enrollment period approaches, starting October 15 through December 7, residents can access this resource to receive personalized guidance. Through VICAP, trained counselors aid in identifying the most suitable healthcare plan, help file for medical benefits and educate individuals on how to prevent health care fraud. For more information, Alexandria residents can call their local VICAP program at 703-746-5999.  

  • June is Alzheimer's Awareness! Join the Movement. Become a Friend of Dementia

  • June 21: Register to attend Diabetes and Dementia, a Brain Health Academy webinar.

  • June 22: Members can register to attend Don’t Ditch Life Insurance, Use it for Care with Lisa Rehburg, or anyone can register to attend the Prolonged Grief Disorder and its Treatment webinar.

  • June 27: Join us for a webinar to Advance Care Planning Education, Empowerment and Advocacy.

  • June 27: Advanced registration opens for On Aging 2024 to offer members an early discount on registration.

  • June 28: ASA is hosting a new MPA Future Proof Live: Cross-sector Planning for Aging at the Local and State Levels.

  • July 18: Register to attend How Do You Know When Home Care Is No Longer Enough.

  • July 19: Attend a webinar on Hearing Loss and Dementia.

  • July 25: Register for a webinar on The Role of Doulas at End-of-Life.

 

Caregiver Support

Favorite Books and Suggested Reading Support

  • Chapman, Gary (2016). Keeping Love Alive As Memories Fade: The Five Love Languages and the Alzheimer's Journey. Northfield Publishing.

  • Basting, Anne. 2020). Creative Care: A Revolutionary Approach to Dementia and Elder Care. Harper One

  • Davis, P. (2021). Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's. Liveright PublishingPublishing Corp.

  • Mace, Nancy and Rabins (2021). The 36-hour DayJohns. Hopkins Press.

  • Zeisel, John, (2009). I'm Still Here. Penguin Group.

  • Lokvig, j. (2016). The Alzheimer's Memory Cafe: How to start and succeed with your own cafe. Endless Circle Press.

  • Clionsky, M. Dementia Prevention: Using Your Head to Save Your Brain. Johns Hopkins University Press.

  • Weiner, H. The Brain Under Siege: Solving the Mystery of Brain Disease, and How Scientists are Following the Clues to a Cure. BenBella Books.

  • Porcaro, C. A Caregiver's Guide to Communication Problems from Brain Injury or Disease. Johns Hopkins University Press.

  • Fenker, R. (2016). Don't Rain on My Parade - Living a Full Life with Alzheimers's and Dementia. Cimarron International LCC.

  • McFadden, S. (2020). Dementia-friendly communities: Why we need them and how we can crete them. Jessica Kingsley Publishers.

  • Taylor, R. (2007). Alzheimer's from the Inside Out. Health Professional Press.

  • Decker, R. (2016). Don't Rain on My Parade - Living a Full Life with Alzheimer's and Dementia. Cimarron International LLC.

  • Devi, G. (2017). The Spectrum of Hope: An Optimistic and new approach to Alzheimer's Disease and other Dementias. Workman Publishing.

  • Snyder, L. (2011). Living your Best with Early-stage Alzheimers's: An essential guide. Sunrise River Press.

  • Swaffer, K., (2016). What the Hell Happened to My Brin? Jessica Kingsley Publishers.

  • Power, G. A. (2014). Dementia Beyond the Disease. Health Professional Press.

Testimonials

Dear Barbara,

Thank you so much for coming & sharing some of your wealth of knowledge on Dementia: Symptoms, Trigger & Interventions.


You took an exceedingly complex topic & gave those of us with no medical training or education a non-emotional intro to what Dementia is & is not. From there, you set us on a journey of understanding ways we can prepare for & even sometimes prevent its upsetting behaviors.


I've always found even the idea of Dementia to be a bit scary, but your plain English descriptions & personal stories allowed me to listen & learn & sometimes even laugh with you.


Thank you again,

Cate 

Cate Kinney

Hi Barbara! Thank you again for the wonderful presentation on dementia. It was informative and interesting. You handled the technical difficulties very well! At the meeting afterwards, the ladies agreed it was a timely matter.
Best wishes on the sale of your upcoming book!
May God bless your efforts,

Chris Baughman

This is your Testimonial quote. Give your customers the stage to tell the world how great you are!

Robbie White

This is your Testimonial quote. Give your customers the stage to tell the world how great you are!

Quinn Davis

This is your Testimonial quote. Give your customers the stage to tell the world how great you are!

Riley Jones

Past Events

Dementia: What Is It? - April 12, 2023

Barbara's recent speaking event.

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